Balancing the Asperger's discussion
- TAGS:Asperger's syndrome, Richard Stallman
- IT TOPICS:Careers
My two recent columns about Asperger's syndrome didn't sit well with many of our readers. In the columns, "Asperger's Oxymoron" and "Elusiveness of Joy," I expressed the view that the inward focus and isolation that generally characterize the disorder are detrimental to the human spirit and deprive Aspies of the joy of helping to uplift other people. For those reasons, more than any others, I believe, we need to do whatever we can to help Aspies overcome the disorder.
Readers who posted comments on our Web site generally dismissed my premise, and found it to be somewhat arrogant.
"Who are you to say that in order to find joy, meaning, happiness, or whatever you want to call it that there is a requirement to interact with other people?" wrote one reader, who seemed to capture the thrust of what a lot of the other readers were saying. "Or more precisely, interact in a way that you feel is appropriate? To say that people with Asperger's (or any other ailment, for that matter) cannot truly be happy (or find joy) unless they somehow achieve a pre-defined level of human interaction is naive and narrow-minded."
But not everyone disagreed with my premise. I found it interesting that those who understood where I was coming from were more inclined to e-mail me directly than to post a comment on our site. In order to get some balance into the discussion, I thought I'd share a couple of e-mails I received from parents of Aspies who found some value in what I had written.
The first one is from Bob Lapointe, vice president of IT at Future Electronics in Montreal:
Your recent articles on Asperger's and IT were of special interest to me. Like you, I knew nothing of Asperger's until recently when I saw the Belgium movie Ben X.
This is how I discovered a clue to understanding my 38-year-old son who works in IT and has what you [called] a "shadow" form of Asperger's. Like [free software pioneer Richard] Stallman, he does not have all the symptoms of Asperger's but has enough of them to be qualified as a mini-Aspie.
When he was a teenager he suffered the abuse and social rejection portrayed in the movie, and as parents we were helpless because the medical profession was not able to diagnose him with this disorder since it was not known to them at the time. Hence he is carrying on without any of the enjoyment of life that come from social interactions.
I agree with your statement that "Aspies deserve that happiness," however I must tell you that I have not found anyone who will offer any kind of help. If you do, please share it with us Aspie parents. In the meantime, my son lives on as a mini-Aspie IT social outcast.
And this one is from Kenneth Katz, a software development project consultant at DST Output in South Windsor, Conn.:
I am in complete agreement with you that Asperger's syndrome is a serious problem for those who are afflicted with it.
I met Richard Stallman once, when I was a freshman in college. With what I now know about Asperger's syndrome, I would be more sympathetic to him, but at the time he just seemed like a very strange man. My 9-year-old son has not been formally diagnosed with Asperger's syndrome, but my wife and I suspect that he is also suffering from it, the evidence including "oblivious self-centeredness," to quote your Editor's Note. This clearly impedes his social relationships with his peers, to his great sadness.
In any case, the discussion is a valuable one, and I hope it continues.



